Conference Brochure

Please find attached the Conference Brochure for the Indianapolis Conference.  Please note that we are still working on finalizing the speakers and the schedule.  If you have any questions, please contact Laura at the 5p- Society office at (888) 970-0777 or director@fivepminus.org.

Racers Start Your Engines   Conference Brochure

July 30 – August 2 Sheraton at Keystone Crossing

The 2015 5p Minus Society’s annual conference will be hosted in Indianapolis at the Sheraton at Keystone Crossing.  Located on Indy’s trendy northeast side, the Sheraton features excellent accommodations as well as access to the Fashion Mall.  The Fashion Mall at Keystone Crossing hosts several premier shopping destinations, several restaurants and a movie theater all within walking distance.

 

            If you choose to venture away from the Keystone area there are several exciting and fun things to do in Indianapolis.  Indianapolis is known as the racing capital of the world mostly because of its hosting of the Indianapolis 500 mile race.  Since 1911 drivers have risk life and limb to tame the 2.5 mile oval at speeds over 225 mph.  The Indianapolis Motor Speedway is also home to NASCAR’s Brickyard 400 as well as Moto GP events.  IMS features a hall of fame museum on the speedway grounds with several exhibits as well as a grounds tour that let you share in the storied tradition. 

            On your visit to Indy you might consider these other options as well.  The Indianapolis Children’s Museum, the largest in the world, offers five stories of excitement and education for children.  The Indianapolis Zoo, NCAA Hall of Champions, White River State Park, Indianapolis Cycloplex, Indianapolis Museum of Art, Eiteljorg Museum, Indianapolis Indians, Indianapolis Colts, Monument Circle and Circle Centre Mall all offer something for everyone with many opportunities for enjoyment

.

       This year, the 5p- Society Board of Directors is instituting a fundraising incentive program for those individuals that raise money for the Indy conference.  The program, Race for Rewards, will work like this:

Race to Rewards

Raise $1500.00 – Registration fee for up to 2 adults and 2 children will be waived ($150.00 value)

Raise $3000.00 – Registration fee for up to 2 adults and 2 children will be waived ($150.00) AND one night at the hotel will be free ($114++)

Raise $5000.00 – Registration fee for up to 2 adults and 2 children will be waived ($150.00) AND three nights at the hotel will be free ($342.00++)

            To be eligible for the Race to Rewards program you must be a member of the 5p- Society and be in good standing (membership dues paid).  All monies raised must be received by May 31st.  You may use the Race to Rewards form to make your donation(s) online, or send in your donations to the 5p- Society office (PO Box 268, Lakewood, CA  90714) with clear instructions as to who the donations are for and that they are for the Race to Rewards program.

            For those of you who raise enough funds to have one or all of your hotel rooms covered, you will be responsible for making your own hotel reservations and the 5p- Society and the Sheraton at Keystone Crossing will make an internal change.      

On your Marks

Venue   The 2015 Annual conference will be held at the Sheraton at Keystone Crossing, located 8787 Keystone Crossing, Indianapolis, IN 46240 adjacent to the Fashion Mall at Keystone.  The 5p- Society has been able to secure a $114.00 per night room rate for you.  You can make your hotel reservations two ways:  1) Call the hotel directly at (317)846-2700 and tell them you are with the 5p- Society, or 2) online at https://www.starwoodmeeting.com/events/start.action?id=1407315785&key=2E782DE.  The room rates will be honored 3 nights before and 3 nights after the event.  If you are having difficulty making your reservations, please contact the 5p- Society office at (888)970-0777.

Transportation The hotel is located off of I-465 at Exit 33 and is located right behind the mall on the right.  The Sheraton website has great driving directions from any direction at http://www.starwoodhotels.com/sheraton/property/area/directions.html?propertyID=158.  If you are not driving but flying into Indianapolis International Airport, your options to get to the hotel are a Taxi service (approx.. $65.00) or Above and Beyond Limousine.  Above and Beyond Limousine can be reserved by calling (317)257-0739 or visit their website at www.a-blimo.com (reservations required) and the fees are based on the number of passengers (reservations must be made 24 hours in advance).  If you choose to rent a vehicle, please remember that the 5p- Society has a corporate number through Avis.  The AWD Number is Z829971.

Family Outing 5p- Society is happy to announce that the host families have secured the Indianapolis Zoo as the Family Fun Event.  At the Indianapolis Zoo, you can have three times the fun as this Zoo was the first institution to become triple accredited as a Zoo, botanical garden and aquarium. The cost to attend the event is $8.00 per person.  Children or adults with Cri du Chat Syndrome will be admitted at no cost.  Zoo personnel would like a final count 2 days prior to the event, therefore Pre-registration is required.  Please indicate on your registration if you will be attending the event.  Transportation and lunch will be provided.

Sibling Outing The sibling outing will be at Caribbean Cove Water Park.  The siblings of individuals with Cri du Chat Syndrome (ages 6 and up), who attend the 2015 5p- Society conference, are invited to attend the sibling outing.  Thanks to the host families and fundraising events that have been dedicated to the sibling outing, there will be no direct cost to the families.  Please make sure you sign your sibling(s) up with the conference registration form and return the information into the 5p- Society no later than Friday, July 24 to guarantee that your child(ren) will be able to attend.  Space will be limited to those who sign up after the 24th of July.  There will be plenty of adult supervision!! (or if you would like to volunteer to supervise, please let the 5p- Society office know)

Child Care Complimentary child care is available for children and adults with Cri du Chat Syndrome (all ages) and their siblings (ages 0-13).  Child care providers are family members and friends of our host families along with community volunteers. There will be five child care rooms divided by age.  If you have a caregiver coming with you that would like to volunteer to assist in the child care room, please let us know.

Family Assistance Program The 5p– Society is happy to announce that there will be five (5) scholarships available for families who would like to attend the conference but could use a little financial assistance. The scholarship will assist with the hotel fee for three nights and the basic registration fee for up to two adults and two children. For more info and an application please send an email to director@fivepminus.org or download a form at www.5pminus2015conference.blogspot.com or at www.fivepminus.org/Next_Conference. Thank you to the Turner Family and Moore Family for their assistance with the Scholarship program. Application due date is May 1st.

Hall of Fame Nominations The 5p– Society is now accepting nominations for the 5p– Society Hall of Fame. Categories are: Parent of the Year, Grandparent of the Year, Sibling of the Year and a our open category Checkered Flag Winner of the year. The open category can be a caregiver, volunteer, other family member, doctor, therapist who has gone above and beyond in support of the 5p– Society. Application due date is June 25th. Form can be found in this brochure or download a form at www.5pminus2015conference.blogspot.com or at www.fivepminus.org/Next_Conference .

Claudia Sanger Lending Library  In memory of one of our most dynamic parents, Claudia Sanger, who lost her life to breast cancer, the 5p- Society asks those of you who are attending the conference to bring an item or idea with you to share or lend out to another family.  Some ideas have been AFO’s, toys, or clothes.

What Works Table The 5p- Society also has a table set aside for you to share your ideas with the other families as to what has worked for you with your child.  This can be a product, an idea, or a system.  Your participation is welcomed.

Raffles and 5P Gear To help supplement the conference expenses, the grandparents and other members of the 5p- Society participate by donating items to raffle off.  Handmade quilts, handmade jewelry boxes, jewelry, gift baskets and other items will be available.  If you have something you’d like to bring to raffle off, please let us know.

Meet the speakers

(Proposed, subject to change)

Ambucs

National AMBUCS™, Inc. is a non-profit service organization who are dedicated to creating

mobility and independence for people with disabilities, including providing AmTryke® therapeutic tricycles to individuals unable to operate a traditional bike.

Erin Buck Kriel, Developmental Optometrist

Vision and Learning

Greenwood Vision Development Center, Greenwood, Indiana

Dennis Campbell, Ph.D. and Parent

Cri du Chat 101

Positive Effective Behavior Modification

University of South Alabama, Mobile, Alabama

                                               

Wendy J. Gahimer, M.A., CCC/SLP

Augmentative Communication

Easter Seals Crossroads, Indianapolis, Indiana

Jennifer Grillo, PTA & Teresa Keathley, PT

Hippotherapy: A Treatment Strategy for Physical, Occupational and Speech Therapy

The Children’s Therapy Foundation, Inc.

Nancy Washburn & Crista McIntosh

Transition options after High School

Easter Seals Crossroads, Inc.

Shanida Mathieu, Parent

Navigating the IEP Process – 2 tracks

Louisiana Parent Advocacy, New Orleans, Louisiana

Gretchen Meyers, MD, and  John Mantovani, MD

Neurological issues with Cri du Chat Syndrome and Autism considerations.

Kent Nicholls, Founder 5p- Society and Parent

New Family Orientation

Mary Anne Elhert
Protected Tomorrows

Your Journey through an Eight Step Future Care Planning Program 

 

AmySue Reilly, Ph.D.

Positive Effective Behavior Modification

Auburn University, Auburn, Alabama

Karrie Veteto, OT

Sensory Processing

Crystal’s Behavior Solutions, Fishers, Indiana

 

Schedule of Events

(Proposed, subject to change)

Thursday July 30 2015

·         5:00 PM – 10:00 PM – Registration

·         5:00 PM – 7:00 PM – Welcome Reception

·         7:00 PM – 9:00 PM – New Family Orientation

·         7:00 PM – 9:00 PM- Sibling Mixer

·         7:00 PM – 11:00 PM – AmySue’s Place*

Friday July 31 2015

·         7:30 AM – 12:15 PM – Child Care

·         8:30 AM – 9:00 AM – Opening Session

·         9:00 AM – 10:30 AM – Parent Panels

·         9:00 AM – 12:00 PM – Sibling Supportshop

·         10:30 AM – 12:00 PM – Breakout sessions

·         12:30 PM – 4:00 PM – Indianapolis Zoo Family Outing

·         4:00 PM – 6:00 PM – Grandparents Supportshop

·         7:00 PM – 11:00 PM- AmySue’s Place*

·         8:00 PM – 11:00 PM - Board of Directors Meeting

Saturday August 1 2015

·         7:30 AM – 5:00 PM – Child Care (break from 12:00 PM-2:00 PM)

·         8:30 AM – 9:00 AM – Keynote Speaker

·         9:00 AM – 12:00 PM – Breakout sessions

9:00 AM – 3:00 PM – Sibling Outing Caribbean Cove

·         12:00 PM – 2:00 PM – Lunch on your own

·         2:00 PM – 5:00 PM – Breakout sessions

·         6:00 PM – 10:00 PM  - Banquet, Dance, Pictures

·         9:00 PM – 11:00 PM –AmySue’s Place*

Sunday August 2 2015

·         10:00 AM – 12:00 PM – Closing session

*AmySue’s Place aka Hospitality Suite

Team Indy Many thanks to the Indianapolis Conference Committee for the many hours planning, raising money, and preparing for the conference to make it a success for the families!! Jason & Michelle Myatt Brad & Kyla Chandler Foster & Stephanie Pilcher Board of Directors

 

Banquet and Family Dance

The attire for the Family Banquet is casual.

Volunteer Opportunities

Volunteers are needed for child care throughout the conference.  If you have some extra family members or know of anyone local to the event who can give a couple of hours, please contact the 5p- Society office at (888)970-0777 or send Laura an email at director@fivepminus.org.

T-Shirts

T-shirt for the event can be ordered with your registration form or can be ordered separately.  To guarantee your sizes all shirt orders must be received by July 1^st.  A limited amount of sizes will be available at the conference.  Not attending the conference but would like t-shirts?  Please contact Laura at director@fivepminus.org for an order form.

Conference Registration Form

Please note that this registration form is for those who want to mail-in their registration.  If you prefer to fill out and pay for your registration online, please go to http://form.jotform.us/form/50397427930157.

Thank you for registering for the 2015 5p- Society Annual Conference.  We want to make the process as easy as possible.  This is a family registration form.  Please not that a child is considered under 17 and will receive a child’s meal at the banquet.  If you would like your “child” who is under 17 to receive an adult meal, please indicate under “meal selection.”  Your registration fee will increase by $25.00.  We recognize that some adults with Cri du Chat Syndrome may need a soft meal and the children’s meal would be a better choice for them.  If this is the case, please indicate under “meal selection.”

Please fill out the form completely for each person who is attending, including your child with Cri du Chat Syndrome.  If you require additional space, please send an email to director@fivepminus.org.

T-shirts may be ordered with your registration form.  To guarantee your t-shirt order is received, please return this form no later than July 1, 2015.

If you have any questions about this registration form, please call 888-970-0777.

FAMILY REGISTRATION

Family registration is for up to 2 adults and 2 children (under 17)

Please indicate your membership type (X)	Member ($150):	Non-Member ($200):
Name:	Phone No:
Address:	Email:
City:	Province/State:
Zip Code:	Country:

Tell us about who are coming

	Name	Relationship to Individual with Cri du Chat Syndrome	Dietary Needs	T-shirt Size
Adult 1
Adult 2
Child 1
Child 2

For Child 1 and 2 please fill out the following:

	Child’s Age	Child Care? Y or N	Sibling Outing (siblings only) Y or N	Meal Selection – Child or Adult (additional $25 for adult meal)
Child 1
Child 2

Additional Adults - $50.00

	Name	Relationship to Individual with Cri du Chat Syndrome	Dietary Needs	T-shirt Size
Adult 3
Adult 4
Adult 5
Adult 6

Additional Children - $25.00

	Name	Relationship to Individual with Cri du Chat Syndrome	Dietary Needs	T-shirt Size
Child 3
Child 4
Child 5
Child 6

For Child 3, 4, 5 & 6 please fill out the following:

	Child’s Age	Child Care? Y or N	Sibling Outing (siblings only) Y or N	Meal Selection – Child or Adult (additional $25 for adult meal)
Child 3
Child 4
Child 5
Child 6

The Family Fun Event will be held at the Indianapolis Zoo.  Children and adults with Cri du Chat Syndrome will be free to enter the Zoo.  There will be an $8.00 group rate fee for all others.  Please indicate below how many tickets you would like to purchase. 

# of Tickets x $8.00 ________________

T-Shirts are $10.00 each.  Please indicate how many T-Shirts you have ordered:

# of T-Shirts x $10.00 ______________

Photo Release:

I/we acknowledge that I may be photographed, or recorded.  I hereby release to the 5p- Society all proprietary rights and copyrights in all such photographs, digital images, voices, recordings, actions, films and likenesses (including negatives, positives and prints) which shall be and remain the property of the 5p- Society.  I understand that this material may be used in various publications, public affairs releases, recruitment material, and broadcasts or for other related endeavors.  This material may also appear on the 

5p- Society’s website, and other public social media sites.

I expressly release the 5p- Society, its directors, officers, employees, agents and volunteers, from any and all claims, including copyright and privacy, arising out of any reproduction, broadcast, distribution, publication, or promotion of this event.

_________________________________                        ___________________________________

Signature                                                                                             Signature

For planning purposes, please indicate your child’s deletion type:  “de novo”, unbalanced translocation, mosaic, unknown or other: __________________________________________

Information to help us plan a little better

·         Will you be driving or flying? _____________________

·         Are you staying at the Sheraton at Keystone Crossing or off site? _____________________

·         Did you order a crib from the hotel? _________

·         Did you order a refrigerator from the hotel? __________

·         Do you need a high chair? ____________

You may also renew your membership with the 5p- Society along with your registration.  If you are not a member, you can pay the annual $25.00 membership fee now and pay the Member Registration of $150.00 (this saves you $25.00).  We may also pay three years of your membership fee and save $5.00 by paying $70.00.

Let’s add it all up!

Registration Fee	Member Non-Member	$150.00 $200.00
Additional Adults	#	$50.00 each
Additional Children	#	$25.00 each
Add Additional Adult Meal for Child	#	$25.00 each
Indianapolis Zoo	#	$8.00 each
T-Shirts	#	$10.00 each
Membership Dues	1 Year 3 Years	$25.00 $70.00
		Total

Please make a check or money order (US Dollars):

5p- Society

PO Box 268

Lakewood, CA  90714

If you would like to pay with credit card:

Name on Card: __________________________________________

Card Number: ___________________________________________          Expiration Date: ______________   

3 or 4 Digit Security Code: ___________

Signature: _________________________________________

Mail to address above, or fax to 562-920-5240 (secure)

Questions or concerns:  Please call 888-970-0777 or email  director@fivepminus.org

Please return all 4 pages of your registration form.

Thank you!!!

Hall of Fame Honoree Submission Form

Parent of the Year, Sibling of the Year, Grandparent of the Year

or Volunteer of the Year

To honor that special parent, sibling, or grandparent, or volunteer who has gone above and beyond, for the 5p- Society, please fill out the below form and submit. Please be sure to include all of the information, especially the honoree's mailing address and phone number (we need that information in order to contact your honoree). Also, be sure to tell us how this person went above and beyond for the 5p- Society. We look forward to hearing from you!  Awards will be presented, during the banquet, on August 1, 2015 at the 5p- Society's National Conference, in Indianapolis, Indiana. 

Deadline for submission is: June 25, 2015.

Please submit forms via email or mail to:

5p- Society                                                       Nomination for:

Attn: Hall Of Fame Nominations

PO Box 268                                                      ___ Parent of the Year

Lakewood, CA 90714                                         ___ Sibling of the Year

director@fivepminus.org                                   ___ Grandparent of the Year

                                                                        ___ Volunteer of the Year

Full Name of Nominee:                                                     Nominator’s Full Name:

__________________________                                   __________________________  

Nominee’s Email Address:                                               Nominator’s Email Address:

__________________________                                   __________________________  

Nominee’s Phone Number:                                              Nominator’s Phone Number:

__________________________                                   __________________________  

Nominee’s Street Address:                                               Nominator’s Street Address:

__________________________                                   __________________________  

Nominee’s City / State / Zip:                                              Nominator’s City / State / Zip:

__________________________                                   __________________________  

On a separate piece of paper, please tell us why you feel your nominee should receive the award.

TShirt Order Form

Please use this T-shirt order form ONLY if you are not attending the conference, but would like T-shirts.  If you are attending the conference please put your order on the registration form on pages 5-8.  T-Shirts are $10 each.  Shipping is $5.00 for every 3 shirts ordered.  ORDERS MUST BE RECEIVED BY JULY 1, 2015. Thank you.

Design Front and Design Back

Please indicate your sizes and quantities.  Add it up, add in shipping and submit your order form.  This is a mail in or fax in form.  If you would like to order T-shirts online, please go to

Name
Address
City				State/Province
Zip		Phone #			Email

Please make check payable to 5p- Society and send to:  5p- Society PO Box 268 Lakewood, CA  90714 Or if paying with credit card, indicate below and mail to above address or fax to (562)920-5240.

Youth Sizes		Quantities	Adult Sizes		Quantities
Youth Small 2-4			Adult Small
Youth Medium 6-8			Adult Medium
Youth Large 10-12			Adult Large
Youth X-Large 14-16			Adult X-Large
			Adult XX-Large
			Adult XXX-Large
Totals			Totals
Please add $5.00 shipping for every 3 shirts ordered.
Total Number of shirts                   x $10.00 =                   + shipping                    = Total of
Type of Card Accepted:  Visa, Mastercard or American Express
Card No.							Expiration Date (xx/xx)
3 digit or 4 digit Security code				Amount of Transaction
Name on Card				Signature